The Guest Post That Wasn’t

by Jodifur on April 28, 2009

A few weeks ago I was contacted by a site that will remain nameless to do a guest post for them.  I agreed, partly because I was crazy busy and why not add something else on my plate, and partly because I subscribe to the why not write as many places as possible philosophy.  I thought it was a little strange when they asked me for my last name, and I specifically told them I don't use my last name in blogging and please don't post it but I gave it to them.  I should never have

You totally know where this story is going, right?  They posted my last name.  And I emailed them for FOUR DAYS and asked them to take my last name off.  And then I just got mad and demanded they take the post down.  And they wanted to have a discussion about it.  I was like, discuss it?  TAKE THE POST DOWN.

I do not blog anonymously.  Some of you probably know my last name based on what email address I've emailed you from, if you got a holiday card from me, or if I know you in real life.  But those are my terms.  I do not post it on the internet.  We all have our own boundaries when blogging.  You may not agree with mine and whether or not they make sense and are rationale.  Some people don't even use their real names.  That is not the point of this post.  The point is they broke my boundaries after I specifically asked them not to.  And then ignored me for FOUR DAYS.

So, I'm posting the guest post here.  Partly because I wrote it, and also, because I like it.  It is about an issue near and dear to my heart and I would like someone to read it. 

_________

I was diagnosed with Lupus and Rheumatoid arthritis last year after being sick for 6 months.  And after I got over the initial shock, I did what everyone else does, I started googling.

Lupus is a chronic autoimmune disorder that can cause inflammation, pain, and damage in various parts of the body. Rheumatoid arthritis is an autoimmune disease that causes chronic inflammation of the joints.   Basically, my immune system just does not work the way it is supposed to.  Both disorders are characterized by periods of health and periods of flares.

The more research I did the more I learned that there was some research that suggested that what you ate could influence how often you had flares. Nutritionists recommended eating a lot of fish.  Which, luckily, I did anyway.  I don’t eat meat, but do eat fish, and tend to eat fish at least 3 times a week.  Some even went as far as to recommend taking a fish oil supplement.

Some nutritionists recommended a vegan diet, cutting out all alcohol, and avoiding things like alfalfa sprouts and tomatoes due to their high L-canavanine content.  The information was enough to make your head spin.

When I spoke to my rheumatologist about this her advice was this:  “be healthy.  Eat right.  Exercise.  Take a multi vitamin every day.  Do you need to cut out all alcohol, no.  But don’t over do it.”

I am very lucky.  Since being diagnosed, I have only had one flare, and it was rather mild.  Is it because I eat a lot fish?  Is it because I lived a relatively healthy lifestyle before getting diagnosed? The medical community has yet to reach an agreed upon conclusion that diet plays a role in the conditions but there are some health practitioners who suggest that nutrition does play a role.   But like anything else, being healthy and living healthy translates into feeling healthy.

And even though I’m sick, my goal is to feel healthy as much as possible.

{ 11 comments… read them below or add one }

ljpock April 28, 2009 at 8:46 am

Sucks they didn’t respect your wishes :(
As for the post – happy that things are under control for you right now. I was recently diagnosed with psoriatic arthritis (very similar to RA) and am now playing the “medical lottery” to find out which drug will work that also won’t cause an allergic reaction.
I’m just keeping my hopes up that we’ll find something and always helps keep the spirits up to hear that others are faring well in the battle of auto-imuune diseases.

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Mrs. Wilson April 28, 2009 at 10:51 am

That totally SUCKS about that guest-posting thing. Totally unprofessional of them. Not cool.
That being said, wow. I’d read of your lupus diagnosis already, but wow. I’m glad that you haven’t had many outbreaks. And I think I need to eat more fish (not because of an autoimmune thing, I just don’t like meat but really like fish!)

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Maggie April 28, 2009 at 11:43 am

I’m with you on the last name thing; I don’t use mine, and I don’t use it on purpose. It’s totally unfair that they violated your privacy like that – good for you for making them take it down!

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Elaine at Lipstickdaily April 28, 2009 at 5:11 pm

Sorry about the lupus . . . sounds like you’re doing the right things. And I’m ready to go flame your guest post host!

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She Likes Purple April 28, 2009 at 5:26 pm

I would love to know the site, so I can avoid them if they ever contact me. I really can’t believe they’d do that and then not offer an immediate apology and retraction. That just means they did it knowingly/intentionally and THAT is so much worse than being careless or forgetful. That’s just awful, in my opinion.

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Kimberly April 28, 2009 at 9:25 pm

How rude! I can’t believe you were treated that way. Seriously…where do people get off?

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Janine (@twincident) April 29, 2009 at 9:54 am

Well I’m very glad that they finally responded to you. I think they missed out on a great post and I’m sending the link to 2 of my friends who also have Lupus so they are missing out on at least 2 new visitors as well. {sticking my tongue out at them}

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Sarah @ BecomingSarah.com April 29, 2009 at 6:33 pm

I can’t believe they ignored you for so long. That’s ridiculous!
I’m glad you still posted it here, though =) And I am wholeheartedly with you. I want to feel healthy as often as possible. I’m glad that you seem to have found a balance in your own life =)

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Angela April 30, 2009 at 5:09 pm

That’s weird that they wouldn’t respect your wishes. So many bloggers don’t use their real name, much less their full name! Not even because we’re “hiding” so much as we don’t want to mix up our personal writing and our professional writing.
I’m personally not super careful about it, but I did totally move my blog at one point to get a new blog address because when I’d first signed up I’d used my full name in the url. (Yeah, was utter newbie.) And if it wasn’t going to be such a huge job I’d totally go thru my blog and change names to pseudonyms. I’m just too lazy.
That said, I’m still contemplating someday creating a truly anonymous blog where I can REALLY get into my writing and not have to worry about anyone I know knowing it’s me.

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kim/hormone-colored days May 3, 2009 at 11:11 pm

Good job! I hope this site wasn’t one I recommended to you. I’m sorry they did not respect your wishes, but there’s a lesson in here for all of us.

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JessicaAPISS May 7, 2009 at 7:23 pm

What lame-os.
And no, the lame-o wasn’t me. Any resemblances to articles living or dead are purely coincidental.
Because I think the best name in the blogosphere is Jodifur and that it works as one name perfectly, like Madonna or Cher.
xxoo

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